cant stop wont stop 4 cures
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I began hospice care for my son on January 8th 2015 folowing his second relapse and being told there were no more treatment options. He was distraught at first believing we were giving up on him, but his counts were proving the leukemia was more aggressive than the treatment. We spent that first night playing video games, monopoly, and eating a home cooked meal. Then the pain began. He was on a pain drip that was not touching the incredible burning feeling he was having through his bones. He would cry, vomit, cry, sip water, and vomit it all up seconds later. I explained we were doing everything we could and it was then that, for this first time in his 6 yr leukemia journey he said “Mom, I am done with chemo, I am done fighting". I wept, I became angry, I left the room, and I wanted him to take it back. I gathered myself and went back in with his evening dose of chemo and meds. He said “this is the last time I am taking chemo" and “I love you Mom". The next morning I was awakened by my husband frantically trying to rouse me. He said “there is something wrong with Tony. He is lying on the ground not talking". I fell and ran to his room where I found my son laying against the bed with his sweatpants down and wet spots from urine on the floor and him. He was staring at me but wasn't speaking. I don't know if he even could. He had green bile coming from his mouth dripping down his chest. I called 911 and kept trying to get him to talk to me. He was alive but completely unresponsive. I didn't get to hear him say I love you. I didn't get to hold him with him holding me back. I didn't get to tell him how sorry I was for anything I could ever think of. I didn't get to hear him utter another word ever again. Now all i feel is his ashes hanging on my chest and videos and pictures to see him.
Cancer is the second leading cause of death in children (after accidents). About 1,250 children younger than 15 years old are expected to die from cancer in 2015.My son always had a clean bill of health until he was 6yrs old. My wish is to create a foundation named Anthony Giving Smiles to reflect the constant giving and caring for others he displayed even in his final days. Please help me raise awareness for childhood cancer and the severe under funding this death sentence of a diagnosis receives. 4% is not enough! Our children are worth more!
You can find US on Facebook at: www.Facebook.com/char.Lafortune and the leukemia lymphoma societies annual light the night walk team page at:
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- charmagne lafortune
Because my child was diagnosed with high risk NEUROBLASTOMA stage IV on 5/20/13